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Event Details

Use this link to livestream the event: https://us02web.zoom.us/j/89650675669


NewYorkBIO partners with patient advocacy groups to connect leaders in the patient community with leaders in the biotech and life science fields. The Summit features panel discussions with representatives from across the patient and life science ecosystems. NewYorkBIO focuses on linking patients with companies and researchers who work to discover and develop treatments and cures.

Mar 20, 2024

12:30 PM - 6:30 PM (EDT)

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New York Genome Center
6th Avenue 101
New York

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Agenda

  • 12:30 PM - 1:00 PMRegistration and Networking
    1:00 PM - 1:05 PMWelcome Remarks

    Jennifer Hawks Bland

    Chief Executive Officer at NewYorkBIO

    1:05 PM - 1:15 PMPatient Perspective

    Leanna Scaglione

    NF2-SWN at The Children's Tumor Foundation

    1:15 PM - 1:30 PMPatient Perspective

    Dr. Iqra Aftab

    Rheumatologist

    1:30 PM - 2:15 PMPanel: Threats to Innovation
    Bioscience company research provides hope to patients and caregivers around the world. The United States drives that innovation and is the global leader when it comes to drug discovery. However, state and federal policies are challenging bioscience companies’ ability to continue to innovate at the same rate. In this conversation, panelists will discuss ways that patient access to new therapies and cures could be limited by policies such as price controls, PDABs, and others.

    Christina Hochul

    Senior Director, Head of Strategic Alliance Development at Alexion, AstraZeneca Rare Disease

    Steven Newmark

    Director of Policy and Chief Legal Officer at Global Healthy Living Foundation

    Daniel Vigil

    Executive Director and Head, State Policy of Novartis

    Tiffany Westrich-Robertson

    CEO of International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis)

    Brian Henderson

    Director, State Government Affairs of the Coalition of State Rheumatology Organizations

    2:15 PM - 2:30 PMPatient Perspective

    Marybeth Krummenacker

    Assistant to the Public Information Officer at The Town of Oyster Bay

    2:30 PM - 3:00 PMFireside Chat

    Jennifer Hawks Bland

    Chief Executive Officer at NewYorkBIO

    Suneet Varma

    Global & US President at Pfizer Oncology

    3:00 PM - 3:30 PMNetworking Break
    3:30 PM - 3:45 PMPatient Perspective

    Noah Siedman

    Database Manager at BDSRA Foundation

    3:45 PM - 4:30 PMPanel: Patients and Policy: Rare Disease
    Patients and caregivers play an important role in shaping policy. In this conversation, panelists will discuss how patients can advocate for innovation by exploring the successes of rare disease policy advocacy. Hear from industry experts and advocates on the engagement process and how the policy discussion can be impacted by your voice.

    Mary Bartlett

    Vice President of External Affairs at NewYorkBIO

    Jean Campbell

    Principal at JF Campbell Consultants

    Frank Rivera

    President at Stronger Than Sarcoidosis

    Kim Ventarola

    Co-Founder and President of Malan Syndrome Foundation

    4:30 PM - 4:45 PMPatient Perspective

    Linnéa Elliott

    Medical Publisher

    4:45 PM - 5:00 PMClosing Remarks

    Jennifer Hawks Bland

    Chief Executive Officer at NewYorkBIO

    5:00 PM - 6:30 PMNetworking Reception Cohosted by JLABS

Speakers

  • Dr. Iqra Aftab (Rheumatologist)

    Dr. Iqra Aftab

    Rheumatologist

    Read Bio
  • Mary Bartlett (Vice President of External Affairs at NewYorkBIO)

    Mary Bartlett

    Vice President of External Affairs at NewYorkBIO

    Read Bio
  • Jean Campbell (Principal at JF Campbell Consultants)

    Jean Campbell

    Principal at JF Campbell Consultants

    Read Bio
  • Linnéa Elliott (Medical Publisher)

    Linnéa Elliott

    Medical Publisher

    Read Bio
  • Jennifer Hawks Bland (Chief Executive Officer at NewYorkBIO)

    Jennifer Hawks Bland

    Chief Executive Officer at NewYorkBIO

    Read Bio
  • Brian Henderson (Director, State Government Affairs of the Coalition of State Rheumatology Organizations)

    Brian Henderson

    Director, State Government Affairs of the Coalition of State Rheumatology Organizations

    Read Bio
  • Christina Hochul (Senior Director, Head of Strategic Alliance Development at Alexion, AstraZeneca Rare Disease)

    Christina Hochul

    Senior Director, Head of Strategic Alliance Development at Alexion, AstraZeneca Rare Disease

    Read Bio
  • Marybeth Krummenacker (Assistant to the Public Information Officer at The Town of Oyster Bay)

    Marybeth Krummenacker

    Assistant to the Public Information Officer at The Town of Oyster Bay

    Read Bio
  • Steven Newmark (Director of Policy and Chief Legal Officer at Global Healthy Living Foundation)

    Steven Newmark

    Director of Policy and Chief Legal Officer at Global Healthy Living Foundation

    Read Bio
  • Frank Rivera (President at Stronger Than Sarcoidosis)

    Frank Rivera

    President at Stronger Than Sarcoidosis

    Read Bio
  • Leanna Scaglione (NF2-SWN at The Children's Tumor Foundation)

    Leanna Scaglione

    NF2-SWN at The Children's Tumor Foundation

    Read Bio
  • Noah Siedman (Database Manager at BDSRA Foundation)

    Noah Siedman

    Database Manager at BDSRA Foundation

    Read Bio
  • Suneet Varma (Global & US President at Pfizer Oncology)

    Suneet Varma

    Global & US President at Pfizer Oncology

    Read Bio
  • Kim Ventarola (Co-Founder and President of Malan Syndrome Foundation)

    Kim Ventarola

    Co-Founder and President of Malan Syndrome Foundation

    Read Bio
  • Daniel Vigil (Executive Director and Head, State Policy of Novartis)

    Daniel Vigil

    Executive Director and Head, State Policy of Novartis

  • Tiffany Westrich-Robertson (CEO of International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis))

    Tiffany Westrich-Robertson

    CEO of International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis)

    Read Bio

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