NewYorkBIO partners with patient advocacy groups to connect leaders in the patient community with leaders in the biotech and life science fields. The Summit features panel discussions with representatives from across the patient and life science ecosystems. NewYorkBIO focuses on linking patients with companies and researchers who work to discover and develop treatments and cures.
Bioscience company research provides hope to patients and caregivers around the world. The United States drives that innovation and is the global leader when it comes to drug discovery. However, state and federal policies are challenging bioscience companies’ ability to continue to innovate at the same rate. In this conversation, panelists will discuss ways that patient access to new therapies and cures could be limited by policies such as price controls, PDABs, and others.
Christina Hochul
Senior Director, Head of Strategic Alliance Development at Alexion, AstraZeneca Rare Disease
Steven Newmark
Director of Policy and Chief Legal Officer at Global Healthy Living Foundation
Daniel Vigil
Executive Director and Head, State Policy of Novartis
Tiffany Westrich-Robertson
CEO of International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis)
Brian Henderson
Director, State Government Affairs of the Coalition of State Rheumatology Organizations
2:15 PM - 2:30 PMPatient Perspective
Marybeth Krummenacker
Assistant to the Public Information Officer at The Town of Oyster Bay
2:30 PM - 3:00 PMFireside Chat
Jennifer Hawks Bland
Chief Executive Officer at NewYorkBIO
Suneet Varma
Global & US President at Pfizer Oncology
3:00 PM - 3:30 PMNetworking Break
3:30 PM - 3:45 PMPatient Perspective
Noah Siedman
Database Manager at BDSRA Foundation
3:45 PM - 4:30 PMPanel: Patients and Policy: Rare Disease
Patients and caregivers play an important role in shaping policy. In this conversation, panelists will discuss how patients can advocate for innovation by exploring the successes of rare disease policy advocacy. Hear from industry experts and advocates on the engagement process and how the policy discussion can be impacted by your voice.
Mary Bartlett
Vice President of External Affairs at NewYorkBIO
Jean Campbell
Principal at JF Campbell Consultants
Frank Rivera
President at Stronger Than Sarcoidosis
Kim Ventarola
Co-Founder and President of Malan Syndrome Foundation
4:30 PM - 4:45 PMPatient Perspective
Linnéa Elliott
Medical Publisher
4:45 PM - 5:00 PMClosing Remarks
Jennifer Hawks Bland
Chief Executive Officer at NewYorkBIO
5:00 PM - 6:30 PMNetworking Reception Cohosted by JLABS