Event Details
NewYorkBIO partners with patient advocacy groups to connect leaders in the patient community with leaders in the biotech and life science fields. The Summit features panel discussions with representatives from across the the patient and life science ecosystems. NewYorkBIO focuses on linking patients with companies and researchers who work to discover and develop treatments and cures.
The Genome Center
101 6th Avenue
New York
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Agenda
- 1:00 PM - 1:05 PMWelcome Remarks
Jennifer Hawks Bland
Chief Executive Officer at NewYorkBIO
- 1:05 PM - 1:15 PMSponsor and Patient Remarks
Dr. Ann-Marie Richard
Director and Patient Engagement Lead in the Internal Medicine Research Unit of Pfizer
- 1:15 PM - 1:30 PMPatient Perspective
Calvin Harris
CEO of New York State Society of CPAs
- 1:30 PM - 2:15 PMPatients and Policy PanelWe will take a deep dive into the biomarker policy that's currently in front of New York Legislators and across the country.
Michael Davoli
Senior Government Relations Director, New York of ACS-CAN
Luke Rosen
Founder of KIF1A.ORG
Jovia Radix
Senior Vice President Corporate & Legislation at Kasirer LLC
Dr. Nicholas Rohs
Assistant Professor Hematology/Oncology Thoracic Medical Oncology at Mount Sinai Blavatnik Family Chelsea Center
- 2:15 PM - 2:30 PMPatient Perspective
Hannah Keime
Filmmaker, Co-Founder and Content Creator, Patient Advocate of HeartCharged Nonprofit
- 2:30 PM - 3:00 PMFireside Chat
Dr. Meena Seshamani
Director of Center for Medicare at Centers for Medicare & Medicaid Services
Jennifer Hawks Bland
Chief Executive Officer at NewYorkBIO
- 3:00 PM - 3:30 PMNetworking Break
- 3:30 PM - 3:45 PMPatient Perspective
Indie Lee
Founder & CEO of Indie Lee
- 3:45 PM - 4:30 PMRole of Rare PanelIn the 40 years since the Orphan Drug Act, rare disease innovation and advocacy has come a long way. In this panel, we will discuss biotechnology centered on rare disease and why innovation in the rare disease space is so important for finding cures and treatments.
Heather Daly
Advocate for Rett Syndrome Families
Amber Freed
Founder, CEO & Mother of Milestones for Maxwell & SLC6A1 Connect
Christina Hochul
Senior Director, Head of Strategic Alliance Development at Alexion, AstraZeneca Rare Disease
Amanda Malakoff
Executive Director of Rare Disease Company Coalition
- 4:30 PM - 4:45 PMPatient Perspective
Brad Gage
Host, Writer, and Video Producer
- 4:45 PM - 5:00 PMClosing Remarks
Jennifer Hawks Bland
Chief Executive Officer at NewYorkBIO
- 5:00 PM - 6:30 PMNetworking Reception
Speakers
Heather Daly
Advocate for Rett Syndrome Families
Read BioMichael Davoli
Senior Government Relations Director, New York of ACS-CAN
Read BioAmber Freed
Founder, CEO & Mother of Milestones for Maxwell & SLC6A1 Connect
Read BioBrad Gage
Host, Writer, and Video Producer
Read BioCalvin Harris
CEO of New York State Society of CPAs
Read BioJennifer Hawks Bland
Chief Executive Officer at NewYorkBIO
Read BioChristina Hochul
Senior Director, Head of Strategic Alliance Development at Alexion, AstraZeneca Rare Disease
Read BioHannah Keime
Filmmaker, Co-Founder and Content Creator, Patient Advocate of HeartCharged Nonprofit
Read BioIndie Lee
Founder & CEO of Indie Lee
Read BioAmanda Malakoff
Executive Director of Rare Disease Company Coalition
Read BioJovia Radix
Senior Vice President Corporate & Legislation at Kasirer LLC
Dr. Ann-Marie Richard
Director and Patient Engagement Lead in the Internal Medicine Research Unit of Pfizer
Read BioDr. Nicholas Rohs
Assistant Professor Hematology/Oncology Thoracic Medical Oncology at Mount Sinai Blavatnik Family Chelsea Center
Luke Rosen
Founder of KIF1A.ORG
Read BioDr. Meena Seshamani
Director of Center for Medicare at Centers for Medicare & Medicaid Services
Read Bio
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